Show what the overexertion bill looked like.
Capture the activity load, delay before symptoms hit, severity of the crash, and whether the recovery arc changed.
ME/CFS records often break because the important part is delayed. The trigger can happen on one day, the crash can land later, and the real cost only becomes clear across sleep, cognition, orthostatic symptoms, and the next attempt at daily life. Mito Map helps keep those pieces on one patient-owned timeline.
Mito Map is useful when the hardest part is not listing symptoms, but showing what exertion cost, how delayed the crash was, and whether function actually returned. The goal is not to diagnose ME/CFS. The goal is to make post-exertional worsening, orthostatic burden, sleep disruption, and baseline shifts legible enough to review later.
Capture the activity load, delay before symptoms hit, severity of the crash, and whether the recovery arc changed.
Track whether cognitive load, standing time, chores, or walking tolerance returned to baseline or stayed compressed.
Keep crashes, supports, function anchors, and intervention changes together so the next appointment starts from evidence.
Keep exertion, cognitive demand, travel, stress, sleep loss, standing time, or illness exposure beside the event so delayed PEM is easier to review later.
Track showering, meals, reading, work blocks, school time, walking tolerance, or upright time so each crash shows what usable capacity actually changed.
Keep sleep disruption, orthostatic symptoms, sensory overload, pain, and next-attempt payback tied to the same record when recovery burden lasts longer than the trigger itself.
The friction point in ME/CFS is often the handoff itself: someone has to explain the trigger, the delayed payback, the function drop, and the recovery lag in a small amount of time. Use the ME/CFS route when that crash-aware summary is still the main job, then route out only if post-viral, orthostatic, or broad overlap framing becomes clearer.
Use walking, showering, reading, school, work, or upright time so the next person can see what changed from a real baseline.
Keep it to one exertion burst, travel day, poor sleep stretch, infection exposure, or support change that happened before the crash landed.
Baseline before the change: [last stable function]. What changed first: [activity, travel, poor sleep, infection exposure, or stress spike]. Crash pattern: [delay before payback, worst symptoms, and recovery length]. What we need next: [the next question, support, or documentation need].
Use the ME/CFS page when delayed payback, pacing breakdown, crash timing, and lower-baseline stretches are doing the most explanatory work. Do not force every mixed thread into ME/CFS framing if the lead problem has shifted to post-viral relapse drift, upright intolerance, mast-cell-style flares, or one broader multisystem overlap that needs a shared hub first.
Use this route when people need one place to connect exertion, recovery lag, pacing, cognition, sleep disruption, and orthostatic burden before another lane takes over.
Use the source-tagged signup when the next move is primary care, neurology, autonomic, rehab, disability, or family-support follow-up and the person needs the ME/CFS lane attached to their own account.
If the story is now mostly infection-linked relapse drift, standing intolerance, trigger-heavy flares, or one broad chronic illness timeline, move to the narrower or wider route that fits the lead pattern instead of forcing everything into ME/CFS copy.
Start with the ME/CFS page when post-exertional malaise, delayed payback, lower-baseline stretches, and pacing breakdowns are doing the most explanatory work. Move to another route below when a different pattern is clearly leading or when the tracked signup should attach to a narrower or broader source.
This route reads the same aggregate-only community-growth status feed used by the public hub, but filters it to the ME/CFS lane so moderators, advocates, and clinic-prep partners can see whether the route is stale, where fixture-only proof is still blocking traction claims, and which recent organizations matched this page.
Start with the landing page when someone needs context first. Use the tracked signup when someone is ready to keep their own patient-owned record attached to source community-growth-me-cfs.
ME/CFS friction often shows up at handoff time: a patient needs to explain delayed payback, a caregiver needs one compact summary before the next visit, or a clinician needs a cleaner picture of what exertion actually cost. This page works best when it becomes the first stable record for those crash-and-recovery handoffs.
Note the most recent stable walking, showering, chores, work, school, upright time, or cognitive baseline so the next handoff starts from the right comparison point.
Capture exertion, travel, stress, infection exposure, poor sleep, standing load, social load, or medication changes that happened before the crash sequence widened.
State what the next team needs to review now: pacing breakdown, recovery lag, orthostatic drift, symptom spread, or whether practical capacity is staying compressed between crashes.
The ME/CFS lane is currently the top same-day review route in community growth, so the public share order matters. Keep the first touch conservative: open the PEM page first, add the referral handoff or crash tool second, use the tracked signup only when someone asks for their own record, and widen into overlap routes if the thread stops being clearly PEM-led.
Use the public route when someone needs to see how crash timing, recovery lag, and function compression fit on one page before you ask them to create an account.
Use the referral handoff page for caregiver or clinic prep, or Crash Decoder when the immediate need is making the trigger-to-payback sequence easier to review.
Switch to the tracked ME/CFS signup once the person wants a patient-owned account and the PEM-first route is still the clearest home for the next handoff.
Move into Long COVID, POTS and dysautonomia, the crash-and-orthostatic overlap bridge, or the broader complex chronic illness hub when post-viral, orthostatic, or mixed-label burden becomes the lead story.
The first useful ME/CFS handoff is usually public and proof-safe: show the PEM-focused page, let someone see the workflow, and only then switch into the tracked signup if they want their own record. This keeps moderator, booth, and clinic-resource follow-up conservative while still giving people a concrete next step.
Use the landing page when someone needs a fast example of how to organize crash timing, function drift, and recovery burden before the next care conversation.
Pair the page with the measured-function score when the immediate need is cleaner history for primary care, neurology, autonomic, rehab, or disability-prep follow-up.
Move to the crash-and-orthostatic overlap bridge when post-viral relapse drift, upright intolerance, MCAS-type flares, or mixed multisystem load are doing more explanatory work than the ME/CFS frame alone.
Use the page when an advocate, moderator, or educator wants a patient-owned PEM-history tool that can sit safely in a resource list without implying endorsement, diagnosis, or treatment authority.
Mito Map is an organization and tracking tool. It does not diagnose ME/CFS or any other condition, and it does not replace medical care.