Position Changes
Keep upright burden tied to timing.
Capture what happened when standing, walking, showering, waiting in line, or staying upright longer than usual.
Orthostatic Pattern Tracking
Make POTS and dysautonomia easier to explain across standing, recovery, and daily function.
POTS and broader dysautonomia patterns rarely stay contained to a single symptom. Heart-rate shifts, dizziness, near-syncope, heat intolerance, hydration strategy, compression, fatigue, brain fog, crashes, and recovery can all move together or split apart. Mito Map gives patients one place to keep those changes on a usable timeline.
Why POTS Fits
The useful record is not just heart rate. It is the whole orthostatic load.
Mito Map is useful when the real problem is reconstructing what happened around upright time, exertion, meals, hydration, medications, temperature, and recovery. The goal is not to diagnose POTS or define dysautonomia subtype. The goal is to make the pattern legible enough for patient review, visit prep, and longitudinal self-comparison.
Intervention Context
Track what actually helped.
Log compression, fluids, salt, meds, cooling, meals, pacing, and whether those changes improved symptoms or function more than once.
Visit Prep
Bring a cleaner story into appointments.
Show symptom timing, trigger context, flare severity, crashes, and daily-capacity changes without rebuilding the same history from memory.
Build A First Useful Record
Start with the upright trigger, the support stack, and the next-day cost.
Upright Trigger
Capture the few conditions that usually tilt the day.
Keep standing time, heat, showering, meals, travel, exertion, illness, or menstrual timing beside the flare so the orthostatic pattern is easier to compare later.
Support Stack
Track what you changed before calling it a better day.
Log fluids, salt, compression, medications, cooling, pacing, meal timing, or rescue steps next to symptom and function changes so repeatable supports stand out.
Recovery Burden
Show whether the flare stayed orthostatic or became a broader crash.
Keep fatigue, brain fog, pain, nausea, sleep disruption, and next-day payback attached to the same record when dysautonomia overlap extends beyond standing intolerance.
Clinic Or Family Prep
Use this before a cardiology follow-up, school plan reset, infusion day, or caregiver handoff.
POTS and dysautonomia handoffs get messy when the story jumps straight to isolated heart-rate numbers or symptoms without the surrounding trigger window and recovery cost. The cleaner handoff is short: what upright load or context changed, what support stack was already tried, and what the next team needs to help decide.
Baseline Before Upright Loss
Start with the last stable standing or walking anchor.
Note the last reliable baseline for standing time, shower tolerance, walking, school, work, driving, or errands so the next handoff starts from a function change instead of a vague flare.
Trigger Or Support Shift
Name what tilted the picture.
Capture heat, infection, travel, showering, exertion, meals, menstrual timing, medication changes, hydration misses, or compression/salt changes that happened before the flare or recovery shift.
Next Visit Ask
End with the narrowest useful question.
State whether the next step is reviewing meds, fluids and salt strategy, compression, tilt-related symptom burden, school or work accommodations, or the overlap route if the story is no longer mostly orthostatic.
Handoff Ladder
Move from public explainer to tracked signup in a fixed order so orthostatic follow-up stays proof-safe.
1. Public route first
Start with the POTS explainer before attribution.
Use the public landing page when a patient, caregiver, moderator, school helper, or clinic contact only needs a safe first look at the orthostatic workflow.
2. Short handoff second
Use the referral handoff page when someone asks for the smallest usable summary.
Keep the note to baseline, trigger or support shift, current orthostatic picture, and the narrowest next question so the handoff stays practical and conservative.
3. Tracked signup only on request
Attach attribution only when someone wants their own record.
Switch to the source-tagged signup only after the person asks for a personal record they can keep using across visits, school notes, or accommodation follow-up.
4. Widen when the story stops being narrow
Do not force a POTS frame on mixed overlap threads.
Route out when hypermobility, PEM, MCAS-style reactivity, or a broader overlap pattern becomes the main organizing problem instead of orthostatic load alone.
Send The Right Next Link
Route by what is doing the most explanatory work right now.
Use the POTS route when orthostatic load is still leading the story. Switch fast when the better explanation is hypermobility, post-exertional crash, mast-cell-type flare timing, or a broader overlap pattern that should stay wider for one more step.
Route Picker
Choose the lane that keeps the next handoff shortest and the tracked source most accurate.
Orthostatic lane
POTS and dysautonomia
Stay here when standing intolerance, heat, tachycardia, presyncope, hydration strategy, and recovery windows are still the clearest first explanation.
Instability lane
EDS and hypermobility
Use when instability, hypermobility, bracing, joint events, and injury burden are doing more explanatory work than upright symptoms alone.
Crash lane
ME/CFS
Switch when delayed payback, PEM, or crash timing matters more than the immediate orthostatic pattern and the next handoff should center recovery windows.
Trigger and flare lane
MCAS
Move here when foods, meds, environmental exposures, heat, or hormone-linked reactivity are dominating the symptom timing and the flare chronology is now the clearer job.
Mixed multisystem lane
Community Route Matrix
Use the overlap hub when no single label is clearly leading and the safest next move is one broad shared record before narrowing back down.
Live Community Snapshot
See the current public-safe POTS and dysautonomia outreach and proof queue before you share the narrow route.
This route reads the same aggregate-only community-growth status feed used by the public hub, but filters it to the POTS and dysautonomia lane so moderators, advocates, school-support helpers, and clinic-prep partners can see whether the route is stale, where first attributable proof is still missing, and which recent organizations matched this page.
Matched contacts
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Public-safe contact matches currently attached to the POTS and dysautonomia beachhead.
Public mentions
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Aggregated public mentions currently surfaced for the route, kept below proof-release detail.
Recent targets
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Recent organizations surfaced for this orthostatic, family-handoff, and clinic-prep lane.
Updated: -
Route status: -
Proof review: -
Activity origin: -
Community Share Pack
Copy-ready POTS and dysautonomia outreach text for moderators, advocates, or patient education handoff.
Start with the landing page when someone needs a cleaner orthostatic-pattern explanation first. Use the tracked signup when they are ready for their own record with source community-growth-pots-dysautonomia.
Attribution source: community-growth-pots-dysautonomia
Booth And Community Routing
Use one short orthostatic-routing script before a support-group follow-up, school note, or event handoff.
POTS outreach often stalls when the next person gets a symptom list without the right route attached. Keep the handoff short: what upright load is failing, which supports were already tried, and whether the next best route is still orthostatic, clearly connective-tissue-led, or broad enough to stay on the overlap hub.
Support Group Or Booth
Lead with the public page before you ask for signup.
Use the landing page first when someone needs a clearer orthostatic explainer, symptom-timing example, or one safe page to send into a support thread.
Clinic Or Resource Follow-Up
Switch to tracked signup only when the record itself is the next step.
Use the source-tagged signup when the person wants their own handoff-ready record for cardiology, neurology, school, work, or family coordination.
Proof-Safe Next Step
Route out fast if another pattern is doing more work.
Move to EDS for instability-led stories, to MCAS for trigger-heavy flare chronology, or to the overlap hub when no single label is stable enough yet.
Proof Packet
Keep the orthostatic handoff tied to the exact proof-safe packet set for the POTS lane.
Proof Bundle
Use the same source-aware packet set when the handoff becomes real.
Move from the public landing page to the referral handoff page first. If the person wants their own record after that, switch to the tracked signup and keep any proof logging under community-growth-pots-dysautonomia only.
Partner And Clinic Reuse
Keep booth, scheduler, and partner copy aligned.
Use the same route order across events, school or family notes, clinic scheduling, and nonprofit follow-up so the orthostatic story stays narrow until overlap routing is clearly needed.
What To Capture
Questions that make a POTS or dysautonomia record useful.
- What were you doing before symptoms hit: standing, walking, heat, showering, meals, travel, or exertion?
- Which supports changed the outcome: fluids, salt, compression, meds, cooling, rest, or meal timing?
- Did the flare stay orthostatic, or did it become a broader crash with fatigue, brain fog, pain, or next-day payback?
- Did the same stretch also look like an MCAS-style flare with food, medication, environment, or heat exposures layered into symptoms and recovery?
- Are standing tolerance and daily function improving, flat, or getting harder to preserve over time?
Mito Map is an organization and tracking tool. It does not diagnose POTS, dysautonomia, or any other condition, and it does not replace medical care.