Listen
Notice recurring questions.
Bring back the fatigue, crash, exercise, sleep, lab, and care-navigation questions people ask repeatedly.
Part-Time Contractor
Mito Map Community Advocate
Help people with mitochondrial disease, chronic fatigue, and energy-related health challenges find useful information, resources, and support while helping Mito Map learn directly from patient communities.
This is not a sales role. The goal is to become a trusted member of relevant communities, understand patient needs, answer questions when appropriate, and provide feedback that helps improve Mito Map.
About Mito Map
We are building practical tools for energy, fatigue, and functional capacity.
Mito Map helps people better understand their energy, fatigue, mitochondrial health, and function. Our goal is to create a practical Energy Score and functional assessment system that helps people understand where they are today and what actions may help them improve.
Mitochondrial disease patients
Rare disease patients
Chronic fatigue patients
Long COVID patients
Biohackers
Researchers
Clinicians
Mission Fit
This role exists because patient communities already know where the real friction is.
Mito Map needs community insight before it needs broad promotion. The advocate helps us understand what patients are trying to solve, which words they use, which resources are missing, and where a tracking tool can be genuinely useful.
Translate
Keep the patient language intact.
Help Mito Map explain tools in plain community wording rather than internal product language.
Protect
Respect group norms.
Share only when appropriate, avoid medical advice, and put community trust ahead of clicks.
Improve
Turn insight into product changes.
Weekly reports should help us improve content, onboarding, tracking workflows, and support resources.
Why Advocates Matter
The role is built around real patient and caregiver needs.
These are representative themes Mito Map is designed around: people need less scattered history, clearer function tracking, and practical ways to prepare for care conversations.
Patients often need a better timeline. Symptoms, crashes, testing, specialists, and supplements can be hard to explain when everything lives in different portals and notes.
Caregivers need a shorter handoff. A clean summary of baseline, recent change, current supports, and the next question can make visits less repetitive.
Communities need useful resources. Good advocacy means sharing practical tracking tools carefully, without turning support spaces into product channels.
Apply Online
Tell us why this role fits you and attach any helpful documents.
Your application will be emailed to Mito Map support with your uploaded documents attached. Please do not upload medical records or private community screenshots unless you have permission to share them.
FAQ
Common questions before applying.
The role is intentionally small, practical, and trust-centered. You do not need to be a clinician or a polished marketer to be useful here.
Is this a paid role?
Yes. It is a part-time contractor role currently scoped at $50-100 per month plus free premium Mito Map access.
How much time does it take?
The expected commitment is about 5-10 hours per week during the pilot period, with a simple weekly report.
Do I need medical or research experience?
No. Lived experience, caregiver experience, community trust, and clear communication are more important than credentials.
Can caregivers apply?
Yes. Caregivers who understand mitochondrial disease, chronic fatigue, rare disease, Long COVID, ME/CFS, or related communities are welcome to apply.
Will I be expected to promote Mito Map constantly?
No. The role is not spammy promotion. The priority is listening, helping where appropriate, and sharing resources only when they fit community rules and the conversation.
What happens after I apply?
Your application is sent to Mito Map support for review. If there is a fit, the next step is a short conversation about communities, availability, and pilot goals.
Responsibilities
Listen first, help where appropriate, and bring back useful community insight.
The role centers on respectful community engagement, structured observation, and clear weekly reporting.
Engagement
Participate in relevant patient communities.
- Mitochondrial disease groups
- UMDF communities
- Adult mitochondrial disease groups
- ME/CFS and chronic fatigue communities
- Long COVID communities when relevant
Support
Share resources without pushing the product.
- Read discussions and identify needs
- Respond when you have relevant experience
- Share educational information
- Help members find practical resources
- Build relationships with community members
Research
Track recurring questions, symptoms, and trends.
- Common fatigue and crash questions
- Frequently discussed symptoms
- New treatments and interventions
- Common frustrations
- Frequently requested resources
What To Notice
Bring back the questions patients are already asking in their own language.
We want the advocate to help Mito Map understand patient needs, not force the community into our existing vocabulary.
Common questions to track
- Why am I so fatigued?
- Why do I crash after activity?
- How do I know if a supplement is helping?
- How can I measure improvement?
- Is exercise helping or hurting me?
- Why does my energy fluctuate so much?
Symptoms and themes to track
- Exercise intolerance
- Muscle weakness
- Brain fog
- Fatigue
- Sleep issues
- Autonomic symptoms
Weekly Deliverables
Submit a simple weekly report that turns community learning into product insight.
The report does not need to be fancy. It should make patterns clear and help the team decide what to build, explain, or investigate next.
| Community Activity | Count |
|---|---|
| Groups monitored | X |
| Posts reviewed | X |
| Responses made | X |
| Direct conversations | X |
Top questions
List the 5-10 most common questions seen that week, with wording as close to the community language as possible.
Top symptoms discussed
Rank the most frequently observed symptoms, including fatigue, brain fog, exercise intolerance, weakness, and sleep disruption when present.
Interesting conversations
Provide links or screenshots of particularly insightful discussions, with care for privacy and community norms.
Potential testimonials
List community members who may be interested in sharing their story, testing Mito Map, or participating in future research.
Product feedback
Identify features patients want, confusing parts of Mito Map, missing functionality, and new tool or assessment opportunities.
Success stories
When appropriate, document user experiences and stories that may help future patients understand the value of organized tracking.
30-Day Pilot
Success means learning where Mito Map can genuinely help.
After 30 days, we want to understand community fit, messaging fit, product fit, and early growth signals.
Community fit
- Which groups are most engaged?
- Which groups are most receptive?
- Which groups should we focus on?
Messaging fit
- What language resonates?
- What language does not resonate?
- Which problems attract the most interest?
Product fit
- What features do people want?
- What questions does Mito Map answer well?
- What questions remain unanswered?
20+ meaningful conversations
10+ Mito Map referrals
New signups tracked only
1-3 testimonials
10+ feature suggestions
Ideal Candidate
We strongly prefer someone with lived experience and community trust.
The best fit is someone who already understands how patient communities talk, what they need, and how to communicate respectfully.
Personal experience with
- Mitochondrial disease
- Rare disease
- ME/CFS
- Long COVID
- Chronic fatigue
Active in
- Facebook groups
- Patient communities
- Support communities
Strong communication skills
- Communicate respectfully
- Explain complex concepts simply
- Build trust
- Listen carefully
Guidelines
This role depends on trust, restraint, and patient-centered communication.
The advocate should be useful first. Community relationships matter more than promotion.
Do
Help people
Share educational information
Build trust
Listen first
Report community insights
Do not
Spam groups
Constantly promote Mito Map
Make medical claims
Give medical advice
Argue with community members
Represent yourself as a clinician unless you are one
Why This Role Matters
Patient voices should shape what Mito Map becomes.
Many patients spend years searching for answers about fatigue, energy limitations, exercise intolerance, and mitochondrial function. This role helps Mito Map better understand those challenges while ensuring patient voices directly influence future product development.